Pediatric Gastroenterology, Hepatology & Nutrition

The Korean Society of Pediatric Gastroenterology, Hepatology and Nutrition (대한소아소화기영양학회)
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Quality of Life and Anorectal Malformations: A Single-Center Experience

  • Scire, Gabriella (Division of Pediatric Surgery, Department of Surgery, Dentistry, Pediatrics, and Gynecology, Pediatric Fertility Lab, Women & Child Hospital, University of Verona) ;
  • Gabaldo, Riccardo (Division of Pediatric Surgery, Department of Surgery, Dentistry, Pediatrics, and Gynecology, Pediatric Fertility Lab, Women & Child Hospital, University of Verona) ;
  • Dando, Ilaria (Department of Neurosciences, Biomedicine and Movement Sciences, University of Verona) ;
  • Camoglio, Francesco S. (Division of Pediatric Surgery, Department of Surgery, Dentistry, Pediatrics, and Gynecology, Pediatric Fertility Lab, Women & Child Hospital, University of Verona) ;
  • Zampieri, Nicola (Division of Pediatric Surgery, Department of Surgery, Dentistry, Pediatrics, and Gynecology, Pediatric Fertility Lab, Women & Child Hospital, University of Verona)
  • Received : 2022.02.11
  • Accepted : 2022.05.02
  • Published : 2022.07.15
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Abstract

Purpose: The treatment and long term clinical outcomes of anorectal malformations (ARM) in children have always been the focus of pediatric surgeons. This study aimed at reporting our experience as far as long-term follow-up of ARM in children is concern. Methods: We enrolled patients treated between 1999 and 2019, and established selection criteria to choose appropriate subjects. A validated questionnaire was used to determine long-term quality of life outcomes. Results: Out of a total of 48 patients treated within the study period, 28 were enrolled in this study. Among the latter, more than 35% had at least one long-time complication, and more than 90% had a good lifestyle. Urinary and fecal continence was achieved in more than 95% of the patients using medical devices. Conclusion: This study aimed to bring up new concepts; taking into consideration all aspects of life in patients with ARM, from school life to sexuality, while evaluating fecal and urinary continence. This is essential for the improvement of the skills of the different specialists involved in the management of these patients, and for the implementation of strategies that can improve postoperative function. Most especially, it will also help improve communication between doctors to ensure an adequate transition of these children into adult life.

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References

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