Journal of Digital Convergence (디지털융복합연구)

The Society of Digital Policy and Management (한국디지털정책학회)
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The Effect of Data 3 on the Utilization of Medical Big Data for Early Detection of Dementia

데이터 3법이 치매 조기 예측을 위한 의료 빅데이터 활용에 미치는 영향 연구

  • Kim, Hyejin (Global Digital Policy Research Institute)
  • 김혜진 (글로벌 디지털 헬스케어 정책 연구소)
  • Received : 2020.03.02
  • Accepted : 2020.05.20
  • Published : 2020.05.28
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Abstract

As the incidence and prevalence of dementia increases with our aging population, so does the social burden on our society, which calls for a special emphasis on need for early diagnosis. Thus, efforts are made to prevent dementia and early detection but with current diagnostic measures, these efforts appear futile. As a solution, it is crucial to integrate and standardize healthcare big data and analysis of each index. In order to increase use of large database, the Korea National Assembly passed the Data 3 Act focusing on open-access and sharing of database, but a follow-up legislation is needed a for safer utilization. In this study, we have identified number of foreign of foreign policies through review of prior researches on the topic leading to specific enforcement ordinances tailored to the Data 3 Act for safe access and utilization of database. We also aimed to establish secure process of data collection and disposal as well as governance at the national level to ensure safe utilization of healthcare big data.

치매(dementia)는 고령화와 함께 유병 인구가 지속적으로 늘어남에 따라 사회적 부담이 가중되고 있는 만큼 조기 진단의 필요성이 강조되고 있다. 이에 치매 예방 및 치매조기진단을 위한 검진을 실시하고 있으나 현재의 검사로는 치매조기진단이 사실상 불가능한 것으로 나타났다. 이를 해결하기 위해서는 의료 빅데이터의 통합 및 각각의 지표를 분석한 결과를 융합·패턴화 시키는 것이 필수적이다. 이에 국회에서는 빅데이터 활용 활성화를 위해 빅데이터의 개방과 공유를 골자로 하는 데이터 3법이 통과되었으나 보다 안전한 활용을 위해 후속 입법의 필요성이 제기되고 있다. 본 연구에서는 선행 연구 고찰을 통해 국외 정책을 파악하고 시사점을 도출, 의료 빅데이터의 안전한 활용을 위해 데이터 3법에 맞춘 구체적 시행령 제정 및 수집 및 폐기까지의 단계별 보안책 수립, 그리고 국가 차원의 거버넌스 구축을 제안하였다.

Keywords

References

  1. Alzheimer's Disease International. (2015). Title Word Alzheimer's Report London. 22-23
  2. J. H. Lee. (2017). Analysis of the association between dementia disease and other diseases using health insurance claim data. Master's Thesis Application. Chungbuk National University Graduate School. Chungbuk.
  3. K. W. Kim, S. J. Sung, B. N Kim, K. N. Lee, Y. J. Kim. M. M. Jeon & H. N. Kim. (2014). Pre-planning study for the 3rd National Dementia Management Comprehensive Plan. Seoul National University Bundang Hospital: Bundang.
  4. S. J. Ko, Y. H. Jung, & D. Y. Kim. (2016). Social burden of dementia and prevention and management measures to respond to the senior society.
  5. J. A. Choi. (2007). A study on the dementia prevention and early screening program participation of the elderly and knowledge of dementia, thesis for master's degree application. Graduate School of Ewha Womans University. Seoul.
  6. M. K. Kim, K. H. Seo. (2017). Comparative study on domestic and overseas dementia management policies. National Policy Research. 31(1), 233-260. DOI : 10.17327/ippa.2017.31.1.010
  7. J. J. Park. (2020). 'Start is half'...Realize the data economy securing prime water [Press release]. Retrieved from https://www.etnews.com/20200109000070
  8. K. B. Lee .(2020). "Data 3 Act, Bringing Opportunities to Biohealth Industry" [Press release]. Retrieved from http://www.bloter.net/archives/369264
  9. H. Y. Kwon. (2019). Prospects and challenges for the revision of the Data Regulation Act KISO Journal (36), 16-21.
  10. W. K. Rhee. (2009). A Subject of Welfare Policy for The Elderly with Dementia in the Super-Aged Society. Master's thesis, Sangmyung University.
  11. S. G. Koo, H. Y. Park. & J. H. Park. (2017). Title. A Systematic Review of Nonpharmacological Interventions on Activities of Daily Living in Dementia. Journal of the Korean Gerontological Society, 37(2), 445-459.
  12. Ministry of Science, ICT and Future Planning. (2017). Definition report of brain map and convergence technology for early diagnosis and prediction of dementia: Final report of the 3rd year of bio-medical technology business. Gwacheon.
  13. B. N. Kim. .(2017). Domestic Dementia Management Strategy through Comparison of Overseas Dementia Policies. HIRA Vol. 11, No. 4. Health Insurance Review & Assessment Service
  14. J. H. Lim. (2020). 'Initial Dementia Diagnosis' in 10 minutes, with domestic AI technology [Press release]. Retrieved from https://www.seoul.co.kr/news/newsView.php?id=20200213027025&wlog_tag3=naver
  15. S. S. Shin. (2020). Need to supplement and improve the "Data 3 Act" by monitoring and referring to the US "Personal Information Protection Act" [Press release]. Retrieved from http://www.kidd.co.kr/news/214247
  16. Ministry of Health and Welfare. Seoul National University Bundang Hospital. (2013). 2012 dementia prevalence survey.
  17. Y. T. Lee, K. M. Cho, E. Y. Kim, J. S. Park. (2012). A study on the medical service industry policies of major countries. Cheongju: Korea Health Industry Development Institute.
  18. H. C. Kim. .(2018). A study on health care policy using public big data in the 4th industrial revolution: focusing on the development of a model for predicting dementia for the elderly. Doctoral thesis. University of Science and Technology Graduate School. Daejeon.
  19. U.K. Department of Health. 2009. 'Living well with dementia: A National Dementia Strategy', London.
  20. U.K. Medical Research Council, Retrieved May 31, 2017 from http://www.mrc.ac.uk/
  21. Department of Health. (2019). Living well with dementia: A National Dementia Strategy. London: Author.
  22. Y. S. Kim. H. R Shin, S. R. Um, & S. K. Kim. (2019). [Planning Topic 1] What has changed since the dementia national responsibility system?: Suggestions on the welfare of the elderly for the development of the system. Korean Elderly Welfare Society Conference., 13-41.
  23. J. K. Ko. & M. K. Cho. (2018). A Comparative Study of Korea and Japan on the Early Dementia Screening System. Japanese Cultural Studies, 67, 331-344. DOI : 10.18075/jcs..67.201807.331
  24. B. H. Oh. (2008). Early detection of dementia and risk factor management. Journal of Clinical Elderly Medicine, 9(3), 354-360.
  25. Orimo, S. (2011). Community Network for Dementia and Critical Path in Japan Research and Reviews JMAJ 54(5). pp.305-309.
  26. J. H. Yoo. (2020) Choose for a happy old age, get a dementia early checkup [Press release]. Retrieved from http://www.newsworker.co.kr/news/articleView.html?idxno=59973
  27. W. H. Kim. & J. H. Jang. (2017). Efficient dementia screening and management system using a smartphone. Journal of Arts, Humanities and Social Convergence Multimedia, 7, 577-585. DOI : 10.14257/AJMAHS.2017.01.47
  28. D. J. Kim. (2020). [Year-round planning AI is my friend] First, second, and third is data [Press release]. Retrieved from http://it.chosun.com/site/data/html_dir/20200205022 69.htm
  29. D. H. Hwang. (2020). After the passage of the National Assembly of Data 3 Act, the beginning of a data power [Press release]. Retrieved from http://www.ddaily.co.kr/news/article/?no=191394
  30. H. Y. Kwon. (2019). The prospects and challenges for the revision of the Data Regulations Act 3. KISO Journal (36), 16-21
  31. H. J. Kang. (2016). Health Care Big Data Policy Status and Challenges
  32. D. H. Won. (2020). The future that data 3 Act changes [Press release]. Retrieved from http://leaders.asiae.co.kr/news/articleView.html?idxn o=141196
  33. C. J. Lee. (2020). Intensive investment in securing original technologies such as research on the development of new drugs and overcoming dementia [Press release]. Retrieved from
  34. Y. M. lee. (2020). Passed amendments to the Data 3 Act ... Expected to take another leap forward by using big data from the insurance industry [Press release]. Retrieved from http://www.news2day.co.kr/147964
  35. J. M. Noh. (2019). Safe data 3 Act? There is no provision for biometric information. [Press release]. Retrieved from http://www.mediatoday.co.kr/news/articleView.html?idxno=204063
  36. S. H. Wang. (2018). Legislative Guidelines for Public Data Governance of Health Care Information. Korea Legal Research Institute
  37. S. H. Kim. (2002). Information protection management and policy: Saengneung publisher.
  38. D. S. Kim, M. S. Kim. (2006). Medical information protection issues and policy direction informatization policy as the e-Health era progresses. Informatization Policy, 13(4), 128-148.
  39. H. S. Kim, D. Y. Park (2014). Research on policy measures to balance the protection and use of personal information in the era of big data. Ministry of Science, ICT and Future Planning
  40. B. M. Suh. (2006). Research on the protection of personal and medical information in the United States. Information and Communication Academic Research
  41. Solove, J. (2007). 'I've Got Nothing to Hide' and Other Misunderstandings of Privacy. San Diego Law Review, 44, 745-760.
  42. Volkert, S. (2000). Telemedicine: Rx for the Future of Health Care. MTTLR (Michigan Telecommunications and Technology Law Review), 6(1), 147-214.
  43. Y. H. Kim. (2020). The government spurs follow-up to the "Data 3 Act" ...Enforcement Decree Next Month[Press release]. Retrieved from http://www.zdnet.co.kr/view/?no=20200121140026
  44. S. Y. Oh, J. H. Park. & J. W. Kim (2019). Gather public institution health care big data to protect national health! : Ministry of Health and Welfare
  45. I. Y. Jung, & W. M. Koo (2018). Data integration plan to build a healthcare ecosystem. Trends and Issues, 46, 1-38.
  46. M. H. Oh. (2019). Consistent government policies are needed to utilize healthcare big data. In: Hospital newspaper.
  47. Medicine, I. o. (2009). Leadership Commitments to Improve Value in Healthcare: Finding common ground: Workshop Summary. Washington (DC): National Academies Press (US)