과제정보
연구 과제 주관 기관 : Korea Health Industry Development Institute, Seokchun Daewoong Foundation
참고문헌
- Weeks JC, Cook EF, O'Day SJ, Peterson LM, Wenger N, Reding D, et al. Relationship between cancer patients' predictions of prognosis and their treatment preferences. JAMA 1998;279(21):1709-14. https://doi.org/10.1001/jama.279.21.1709
- Fried TR, Bradley EH, Towle VR, Allore H. Understanding the treatment preferences of seriously ill patients. N Engl J Med 2002;346(14):1061-6. https://doi.org/10.1056/NEJMsa012528
- Murphy DJ, Burrows D, Santilli S, Kemp AW, Tenner S, Kreling B, et al. The influence of the probability of survival on patients' preferences regarding cardiopulmonary resuscitation. N Engl J Med 1994;330(8):545-9. https://doi.org/10.1056/NEJM199402243300807
- Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008;300(14):1665-73. https://doi.org/10.1001/jama.300.14.1665
- Volandes AE, Paasche-Orlow MK, Mitchell SL, El-Jawahri A, Davis AD, Barry MJ, et al. Randomized controlled trial of a video decision support tool for cardiopulmonary resuscitation decision making in advanced cancer. J Clin Oncol 2013;31(3):380-6. https://doi.org/10.1200/JCO.2012.43.9570
- Marron JM, Cronin AM, Kang TI, Mack JW. Intended and unintended consequences: ethics, communication, and prognostic disclosure in pediatric oncology. Cancer 2018;124(6):1232-41. https://doi.org/10.1002/cncr.31194
- Tzuh Tang S, Hung YN, Liu TW, Lin DT, Chen YC, Wu SC, et al. Pediatric end-of-life care for Taiwanese children who died as a result of cancer from 2001 through 2006. J Clin Oncol 2011;29(7):890-4. https://doi.org/10.1200/JCO.2010.32.5639
- Park JD, Kang HJ, Kim YA, Jo M, Lee ES, Shin HY, et al. Trends in the aggressiveness of end-of-life care for Korean pediatric cancer patients who died in 2007-2010. PLoS One 2014;9(6):e99888. https://doi.org/10.1371/journal.pone.0099888
- Claflin CJ, Barbarin OA. Does "telling" less protect more? Relationships among age, information disclosure, and what children with cancer see and feel. J Pediatr Psychol 1991;16(2):169-91. https://doi.org/10.1093/jpepsy/16.2.169
- Kreicbergs U, Valdimarsdottir U, Onelov E, Henter JI, Steineck G. Talking about death with children who have severe malignant disease. N Engl J Med 2004;351(12):1175-86. https://doi.org/10.1056/NEJMoa040366
- Vernick J, Karon M. Who's afraid of death on a leukemia ward? Am J Dis Child 1965;109(5):393-7.
- Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol 2006;24(33):5265-70. https://doi.org/10.1200/JCO.2006.06.5326
- Mack JW, Joffe S. Communicating about prognosis: ethical responsibilities of pediatricians and parents. Pediatrics 2014;133 Suppl 1:S24-30. https://doi.org/10.1542/peds.2013-3608E
- Levy PS, Lemeshow S. Sampling of Populations: Methods and Applications. 5th ed. Hoboken, NJ: John Wiley & Sons; 2013.
- Sisk BA, Bluebond-Langner M, Wiener L, Mack J, Wolfe J. Prognostic disclosures to children: a historical perspective. Pediatrics 2016;138(3):e20161278. https://doi.org/10.1542/peds.2016-1278
- Nagy M. The child's theories concerning death. J Genet Psychol 1948;73(First Half):3-27.
- Death in childhood. Can Med Assoc J 1968;98(20):967-9.
- Alvarez WC. Care of the dying. J Am Med Assoc 1952;150(2):86-91. https://doi.org/10.1001/jama.1952.03680020020006
- Yun YH, Kwon YC, Lee MK, Lee WJ, Jung KH, Do YR, et al. Experiences and attitudes of patients with terminal cancer and their family caregivers toward the disclosure of terminal illness. J Clin Oncol 2010;28(11):1950-7. https://doi.org/10.1200/JCO.2009.22.9658
- Forbes T, Goeman E, Stark Z, Hynson J, Forrester M. Discussing withdrawing and withholding of life-sustaining medical treatment in a tertiary paediatric hospital: a survey of clinician attitudes and practices. J Paediatr Child Health 2008;44(7-8):392-8. https://doi.org/10.1111/j.1440-1754.2008.01351.x
- Davies B, Sehring SA, Partridge JC, Cooper BA, Hughes A, Philp JC, et al. Barriers to palliative care for children: perceptions of pediatric health care providers. Pediatrics 2008;121(2):282-8. https://doi.org/10.1542/peds.2006-3153
- Berlinger N, Jennings B, Wolf SM. The Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care Near the End of Life. 2nd ed. New York: Oxford University Press; 2013.
- Surbone A. Truth telling to the patient. JAMA 1992;268(13):1661-2. https://doi.org/10.1001/jama.1992.03490130049015
- Yun YH, Lee CG, Kim SY, Lee SW, Heo DS, Kim JS, et al. The attitudes of cancer patients and their families toward the disclosure of terminal illness. J Clin Oncol 2004;22(2):307-14. https://doi.org/10.1200/JCO.2004.07.053
- Badarau DO, Wangmo T, Ruhe KM, Miron I, Colita A, Dragomir M, et al. Parents' challenges and physicians' tasks in disclosing cancer to children. A qualitative interview study and reflections on professional duties in pediatric oncology. Pediatr Blood Cancer 2015;62(12):2177-82. https://doi.org/10.1002/pbc.25680
- Bluebond-Langner M, Belasco JB, DeMesquita Wander M. "I want to live, until I don't want to live anymore": involving children with life-threatening and life-shortening illnesses in decision making about care and treatment. Nurs Clin North Am 2010;45(3):329-43. https://doi.org/10.1016/j.cnur.2010.03.004
- Hilden JM, Watterson J, Chrastek J. Tell the children. J Clin Oncol 2000;18(17):3193-5. https://doi.org/10.1200/JCO.2000.18.17.3193
- Rosenberg AR, Starks H, Unguru Y, Feudtner C, Diekema D. Truth telling in the setting of cultural differences and incurable pediatric illness: a review. JAMA Pediatr 2017;171(11):1113-9. https://doi.org/10.1001/jamapediatrics.2017.2568
- Keam B, Yun YH, Heo DS, Park BW, Cho CH, Kim S, et al. The attitudes of Korean cancer patients, family caregivers, oncologists, and members of the general public toward advance directives. Support Care Cancer 2013;21(5):1437-44. https://doi.org/10.1007/s00520-012-1689-z
- Kim MS, Lim NG, Kim HJ, Kim C, Lee JY. Pediatric deaths attributed to complex chronic conditions over 10 years in Korea: evidence for the need to provide pediatric palliative care. J Korean Med Sci 2018;33(1):e1. https://doi.org/10.3346/jkms.2018.33.e1
피인용 문헌
- The Attitudes of Physicians and the General Public toward Prognostic Disclosure of Different Serious Illnesses: a Korean Nationwide Study vol.35, pp.47, 2018, https://doi.org/10.3346/jkms.2020.35.e401