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A Long Way from Transfer to Transition: Challenges for Pediatric and Adult Nephrologists

  • Lemke, Johanna (University Medical Center Hamburg-Eppendorf) ;
  • Pape, Lars (Medical School Hannover) ;
  • Oh, Jun (University Medical Center Hamburg-Eppendorf)
  • Received : 2018.03.17
  • Accepted : 2018.04.02
  • Published : 2018.04.30

Abstract

Significant advances in the diagnosis and medical care of children with chronic kidney disease (CKD) are major reasons for the better survival rates of children and adolescents with CKD than the survival rates reported in previous decades. These patients are reaching adulthood, and therefore require a transition to adult medical care. This transition phase is well-recognized to be associated with considerably increased morbidities and medical problems, such as non-adherence, graft loss after transplantation, and loss to follow-up. Low adherence increases morbidity and medical complications and contributes to poorer qualities of life and an overuse of the health care system. However, these tragic outcomes may be avoidable through a structured and well-defined transition program. In the last decade, there has been increasing interest to resolve these medical and psychological problems that occur during the transfer of young adult patients from pediatric to adult renal units. The aims of a successful transition from pediatric to adult medical care include enhancing the individual development of better health-competence and stabilizing, or even improving, the state of health. This review will focus on various aspects of the transition phase of adolescents who have CKD or who underwent kidney transplantation from pediatric to adult nephrology care.

Keywords

References

  1. Blum RW. Transition to adult health care: setting the stage. J Adolesc Health 1995;17:3-5. https://doi.org/10.1016/1054-139X(95)00073-2
  2. Haynes RB. Introduction. In: Haynes RB, Taylor DW, Sackett DL, editors. Compliance in Health Care. Baltimore: John Hopkins University Press; 1979:1-7.
  3. Lemanek KL, Kamps J, Chung NB. Empirically supported treatments in pediatric psychology: Regimen adherence. J Pediatr Psychol 2001;26:253-75. https://doi.org/10.1093/jpepsy/26.5.253
  4. Hamilton J, Daneman D. Deteriorating diabetes control during adolescence: Physiological or psychosocial. J Pediatr Endocrinol Metab 2002;15:115-26.
  5. Oh J, Wunsch R., Turzer M., Bahner M, Raggi P, Querfeld U, et al. Advanced coronary and carotid arteriopathy in young adults with childhood-onset chronic renal failure. Circulation 2002;106(1):100-5. https://doi.org/10.1161/01.CIR.0000020222.63035.C0
  6. Mitsnefes MM, Cardiovascular complications of pediatric chronic kidney disease. Pediatr Nephrol 2008;23(1):27-39. https://doi.org/10.1007/s00467-006-0359-0
  7. Kane S, Huo D, Aikens J, Hanauer S. Medication nonadherence and the outcomes of patients with quiescent ulcerative colitis. Am J Med 2003;114:39-43. https://doi.org/10.1016/S0002-9343(02)01383-9
  8. Lemanek KL, Kamps J, Chung NB. Empirically supported treatments in pediatric psychology: Regimen adherence. J Pediatr Psychol 2001;26:253-75. https://doi.org/10.1093/jpepsy/26.5.253
  9. Falkenstein K, Flynn L, Kirkpatrick B, Casa-Melley A, Dunn S. Noncompliance in children post-liver transplant: Who are the culprits? Pediatr Transplant 2004;8:233-6. https://doi.org/10.1111/j.1399-3046.2004.00136.x
  10. Prufe J, Dierks ML, Bethe D, Oldhafer M, Muther S, Thumfart J, et al. Transition structures and timing of transfer from paediatric to adult-based care after kidney transplantation in Germany: a qualitative study. BMJ Open 2017;7(6):e015593. https://doi.org/10.1136/bmjopen-2016-015593
  11. Kreuzer M, Prufe J, Bethe D, Vogel C, Grosshenning A, Koch A, et al. The TRANSNephro-study examining a new transition model for post-kidney transplant adolescents and an analysis of the present health care: study protocol for a randomized controlled trial. Trials 2014;15:505 doi:10.1186/1745-6215-15-505.