한국산학기술학회논문지 (Journal of the Korea Academia-Industrial cooperation Society)

  • 제18권10호
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  • Pages.309-322
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  • 2017
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  • 1975-4701(pISSN)
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  • 2288-4688(eISSN)
한국산학기술학회 (The Korea Academia-Industrial cooperation Society)
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항암치료를 받는 소아암 환아 어머니의 경험

Mother's experience of caring for children with cancer receiving chemotherapy

  • 정영순 (선린대학교 간호학과) ;
  • 정복례 (경북대학교 간호대학, 간호과학연구소)
  • Chung, Young-Soon (Department of Nursing, Sunlin University) ;
  • Chung, Bok-Yae (College of Nursing, The Research Institute of Nursing Science, Kyungpook National University)
  • 투고 : 2017.07.18
  • 심사 : 2017.10.13
  • 발행 : 2017.10.31
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초록

본 연구의 목적은 항암치료를 받고 있는 소아암 환아를 돌보는 어머니의 경험을 설명하는 것이다. 연구 참여자는 소아암 진단을 받은 후 3개월 이상에서 3년 이하로 항암치료를 받고 있는 소아암 환아를 돌보는 어머니 7명으로 하였다. 자료수집 방법은 심층면담을 통해 자료를 수집하였다. 수집된 자료는 Colaizzi의 현상학적 분석방법을 적용하여 분석하였다. 연구 결과 216개의 의미 진술, 62개의 구성 진술, 16개의 주제 도출, 5개의 주제 모음이 확인되었다. 5개의 주제 모음은 '심장이 녹아내림', '투병의 힘든 여정', '내 아이 지키기', '고마움과 섭섭함의 교차', '가족과 함께 하는 고통과 기대'이었다. 항암치료를 받는 소아암 환아 어머니는 아픈 아이를 돌보는 동안 심한 정서적 변화를 경험하고 있었다. 동시에 다른 한편으로는 가족과 함께 미래를 계획하는 모습을 보여 주었다. 따라서 앞으로 소아암 환아 어머니를 위한 간호에는 환아 어머니의 심리적 소용돌이를 고려한 간호계획이 이루어져야 할 것으로 생각한다.

The purpose of this qualitative study was to describe the experience of mothers who have had children with cancer. Participants were seven mothers who had children diagnosed with cancer between 3 to 36 months. Data were gathered through in-depth interviews and analyzed by Colaizzi's phenomenological methodology. Overall, 216 significant statements, 62 formulated statements, 16 themes and five theme clusters were identified. The five theme clusters were 'heartbreaking sadness', 'arduous journey of battling', 'protect my child', 'feeling varying between gratitude and disappointment', and 'suffering and wishing to be with family'. Mothers who have had children with pediatric cancer receiving chemotherapy have experienced strong emotional fluctuations as well as hope as they cope with their ill child. However, they try to become strong women and embrace their family to cope with their situation. The results of this study will support for health professionals to understand mothers who have had children with cancer and to consider the supportive nursing care in considering mothers' emotional fluctuation.

키워드

참고문헌

  1. National Cancer Information Center. Cancer statistics in Korea Internet. Goyang: National Cancer Information Center; 2014. [cited 2015 December 7] Available from: http://www.cancer.go.kr/mbs/cancer/subvie.jsp?id=cancer_0401020000
  2. W. Landier, S. Bhatia. "Cancer survivorship: A pediatric perspective", The Oncologist, vol.13, no.11, pp. 1181-1192, 2008, 2008-0104 [accessed on 16 March, 2015] DOI: http://dx.doi.org/10.1634/theoncologist
  3. J. Y. Seo, M. S. Yi. "Distress and quality of life in cancer patients receiving chemotherapy", Asian Oncology Nursing, vol. 15, no. 1, pp. 18-27, March, 2015. DOI: https://doi.org/10.5388/aon.2015.15.1.18
  4. C. J. Lyu. "Childhood cancers-diagnosis and treatment", Journal of The Korean Academy of Clinical Art Therapy vol. 2, no. 2, pp. 104-108, 2007.
  5. M. Hedstrom, K. Haglund, I. Skolin, L/ Essen. "Distressing events for children and adolescents with cancer: Child, parent, and nurse perceptions", Journal of Pediatric Oncology Nursing, vol. 20, no. 3, pp. 120-132, 2003. DOI: https://doi.org/10.1053/jpon.2003.76
  6. J. J. Collins, M. E. Byrnes, I. J. Dunkel, J. Lapin, T. Nadel, H. T. Thaler, T. Polyak, B. Rapkin, R. K. Portenoy. "The measurement of symptoms in children with cancer", Journal of Pain and Symptom Management, vol. 19, no. 5, pp. 363-377, 2000. DOI: https://doi.org/10.1016/S0885-3924(00)00127-5
  7. E. J. Park, J. H. Jeong, S. R. Jin, E. J. Cho, J. Y. Kim, J. H. Shin, M. E. Hur, M. J. Seo, E. K. Cha, G. O. Noh. "Nursing needs and satisfaction of family of pediatric cancer patients during chemotherapy", Asian Oncology Nursing, vol. 17, no. 2, pp. 97-106, 2017. DOI: https://doi.org/10.5388/aon.2017.17.2.97
  8. M. J. Dolgin, S. Phipps, D. L. Fairclough, O. J. Sahler, M. Askins, R. B. Noll, R. W. Butler, J. W. Varni, E. R. Katz. "Trajectories of adjustment in mothers of children with newly diagnosed cancer: a natural history investigation", Journal of Pediatric Psychology, vol. 32, no. 7, pp. 771-82, 2007. DOI: https://doi.org/10.1093/jpepsy/jsm013
  9. Y. S. Cho, S. Kim, I. Martinson. "The experience of parents whose child is dying with cancer", Journal of Korean Academy of Nursing, vol. 22, no. 4, pp. 491-505, 1992. DOI: https://doi.org/10.4040/jnas.1992.22.4.491
  10. Y. S. Go. "Phenomenological study on psychological experiences of parents with pediatric cancer", [dissertation]. Chungcheong: Baekseok University; pp. 1-165, 2008.
  11. E. K. Kwon. "Knowledge, attitude and practice of pediatric cancer patients' parents on how to manage chemotherapy and side effects", [master thesis]. Seoul Korea University; pp. 1-37, 2004.
  12. K. S. Oh, M. K. Sim, S. Y. Son. "Health problems and psychosocial adaptation of children with cancer", Journal of Korean Academy Nursing, vol. 33, no. 22, pp. 293-300, 2003. DOI: https://doi.org/10.4040/jkan.2003.33.2.293
  13. P. F. Colaizzi. "Psychological research as the phenomenologist views it". In Valle, RS. & King, ME(Eds.). Existential Phenomenological Alternative for Psychology. p. 48,New York, Oxford University Press, 1978.
  14. Y. S. Lincolon, E. G. Guba, E. G. Naturalistic Inquiry. 1nd ed. p. 14-356. Newbery Park:Sage publications, 1985.
  15. S. H. Kim, E. K. Yoo. "Ethnographic research on adjustment of mothers caring for their cancer children in korea", Korean Journal of Women Health Nursing, vol. 21 no. 3, pp. 216-231, September, 2015. DOI: https://doi.org/10.4069/kjwhn.2015.21.3.216
  16. H. W. Jeon. "Hermeneutic phenomenological understanding on psychological experience about a mother's caring for her child suffering from pediatric cancer", [master thesis]. Seoul Women's University; pp. 1-138, 2002.
  17. S. H. Kim. "The mothers's experiences of caring role for their children with cancer" [dissertation]. Seoul Hanyang University; pp. 1-138, 2014.
  18. W. S. Peggy, K. Sarah, H. Maxine, L. H. Christopher. "Having a child diagnosed with cancer: An assessment of values from the mother's viewpoint", Journal of Pediatric Oncology Nursing, vol. 22, no. 6, pp. 320-327, 2005. DOI: https://doi.org/10.1177/1043454205281682
  19. A. R. Judy. "Tell Me About It: Drawing as a communication tool for children with cancer", Journal of Pediatric Oncology Nursing, vol. 22, no. 4, pp. 203-221, 2005. DOI: https://doi.org/10.1177/1043454205277103