Journal of Hospice and Palliative Care

Korean Society for Hospice and Palliative Care (한국호스피스완화의료학회)
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Effects of Granting Wish to Children with Life-threatening Conditions on Adjustment to Disease with a Focus on the Mediating Effects of Resilience and Stress Caused by Diseases

소원성취 프로그램이 소아암 및 난치병 환아들의 질병 적응에 미치는 영향: 레질리언스와 질병 스트레스의 매개효과를 중심으로

  • Lee, Kwang Jae (Make-A-Wish Korea, Department of Social Welfare, Sungkyunkwan University) ;
  • Choi, Kyung Il (Department of Social Welfare, College of Business Administration & Social Sciences, Halla University)
  • 이광재 (한국메이크어위시재단, 성균관대학교 사회복지학과) ;
  • 최경일 (한라대학교 경영사회대학 사회복지학과)
  • Received : 2015.03.31
  • Accepted : 2015.05.30
  • Published : 2015.06.01
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Abstract

Purpose: The purpose of this study is to examine how wish granting influences children with life-threatening medical conditions when it comes to their adaptation to disease with a focus on the mediating effect of resilience and stress caused by disease. Methods: From January 2, 2015 through January 12, 2015, a survey was conducted on 292 children with life-threatening diseases whose wishes were granted through Make-A-Wish Korea. The data were collected using the impact of a wish scale, the Children's Adjustment to Cancer Inventory, the Childhood Cancer Stressor Inventory, and the resilience scale in children with chronic illness. The data were analyzed using SPSS/WIN 20.0 and Amos 21.0. Results: Satisfaction with the wish granting program enhances resilience, and resilience affects stress caused by medical conditions as well as adaptation to disease. Also, stress caused by medical conditions influences adaptation to disease. Conclusion: Wish granting is effective in both facilitating chronically ill children to adjust to disease and reduce their stress from disease. Thus, children with life-threatening medical conditions could be assisted or motivated to adjust to disease by improving satisfaction achieved by wish granting.

목적: 본 연구의 목적은 소아암 등의 난치병 환자들의 소원성취 프로그램에 대한 만족도가 질병 적응에 미치는 영향에서 레질리언스와 질병 스트레스가 갖는 매개효과를 파악하는데 목적이 있다. 방법: 한국메이크어위시재단에서 2010년부터 2014년까지 5년간 소원을 이루었던 1,597명의 환아 중 문장해독과 기억유지가 가능한 666명의 10대 이상에 해당하는 환아들에게 2015년 1월 2일에 모바일 설문지를 발송하였다. 그 결과 357명이 응답을 하였으나 성실하게 응답한 292명의 자료를 분석하였다. 결과: 소아 난치병 환아들이 소원성취 프로그램에 대해서 갖는 만족도는 레질리언스에 긍정적인 영향을 미치는 것으로 나타났다. 레질리언스는 질병 스트레스에 부정적인 영향을 미치고 질병 적응에는 긍정적인 영향을 미쳤으며, 질병 스트레스는 질병 적응에 부정적인 영향을 미치는 것으로 나타났다. 결론: 본 연구결과를 볼 때 소아 난치병 환자를 위한 소원성취 프로그램에 대한 만족도는 레질리언스의 향상과 질병 스트레스의 감소를 통하여 궁극적으로 이들의 질병에 대한 적응력을 높이는 효과가 있다는 것을 알 수 있다. 따라서 소아 난치병 환자들의 욕구와 특성을 면밀히 분석하여 소원성취 프로그램을 실행하고 만족도를 높이면 이들이 질병에 대해서 보다 적극적으로 대처할 수 있는 동시에 현재의 삶을 긍정적으로 영위할 수 있는 동기를 제공할 수 있을 것이다.

Keywords

References

  1. NCIC: cancer incidence rates [Internet]. Goyang: National Cancer Center; c2015. [cited 2015 Feb 22]. Available from: http://www.cancer.go.kr.
  2. KACLC: childhood cancer in Korea [Internet]. Seoul: Korean Association for Children with Leukemia and Cancer; c2013. [cited 2015 Feb 23]. Available from: http://www.soaam.or.kr.
  3. Hockenberry-Eaton M, Hinds PS. Fatigue in children and adolescents with cancer: evolution of a program of study. Semin Oncol Nurs 2000;16:261-72. https://doi.org/10.1053/sonu.2000.16577
  4. ST: Death rates for the 10 leading causes of death by age [Internet]. Daejeon: Statistics Korea; c2010. [cited 2015 Feb 22]. Available from : http://kostat.go.kr.
  5. Schilling ML, Sarigiani P. The impact of a wish : caregiver perceptions of the benefits of granted wishes for children with life-threatening illnesses and their families. Children's Health Care 2014;43:16-38. https://doi.org/10.1080/02739615.2014.850871
  6. Cho HH. The development and effects of the social competence promotion program for the children with cancer [dissertation]. Seoul: Korea Univ.; 2006. Korean.
  7. Landier W, Bhatia S. Cancer survivorship: a pediatric perspective. Oncologist 2008;13:1181-92. https://doi.org/10.1634/theoncologist.2008-0104
  8. Bhatia S, Landier W. Evaluating survivors of pediatric cancer. Cancer J 2005;11:340-54. https://doi.org/10.1097/00130404-200507000-00010
  9. Gurney JG, Krull KR, Kadan-Lottick N, Nicholson HS, Nathan PC, Zebrack B, et al. Social outcomes in the Childhood Cancer Survivor Study cohort. J Clin Oncol 2009;27:2390-5. https://doi.org/10.1200/JCO.2008.21.1458
  10. Lee EH, Choi SE. The effects of music therapy by self-selected music listening on terminal cancer patients' affect and stress by pain level. Korean J Hosp Palliat Care 2012;15:77-87.
  11. Woodgate RL. Conceptual understanding of resilience in the adolescent with cancer: Part 1. J Pediatr Oncol Nurs 1999; 16:34-43.
  12. Haase JE, Heiney SP, Roccione KS, Stutzer C. Research triangulation to derive meaning-based quality-of-life theory: adolescent resilience model and instrument development. Int J Cancer Suppl 1999;12:125-31.
  13. Sim MK, Shin YH, Kim TI. Resilience, coping, and adjustment to illness in children with chronic illness. J Korean Acad Child Health Nurs 2006;12:151-9.
  14. White PH. Resilience in children with disabilities--trasition to adulthood. J Rheumatol 1996;23:960-2.
  15. Kim HS. Concept development of resilience. J Korean Acad Nurs 1998;28:403-13. https://doi.org/10.4040/jkan.1998.28.2.403
  16. Beardslee WR. The role of self-understanding in resilient individuals: the development of perspective. Am J Orthopsycharity 1989;59:266-78. https://doi.org/10.1111/j.1939-0025.1989.tb01659.x
  17. MAWA: wish impact & facts [Internet]. Phoenix (AZ): Make-A-Wish Foundation of America; c2006-2015. [cited 2015 Feb 22]. Available from: http://wish.org.
  18. MAWK: history [Internet]. Seoul: Make-A-Wish Foundation of Korea; c2015. [cited 2015 Feb 22]. Available from: http://www. wish.or.kr.
  19. Hockenberry-Eaton M, Manteuffel B, Bottomley S. Development of two instruments examining stress and adjustment in children with cancer. J Pediatr Oncol Nurs 1997;14:178-85. https://doi.org/10.1016/S1043-4542(97)90054-0
  20. Jeon NY. Adjustment of teenagers with cancer: a path analysis of related variables [dissertation]. Seoul: Yonsei Univ.; 2001. Korean.
  21. Kim DH. Development of an instrument to measure resilience in children with chronic illness [dissertation]. Seoul: Yonsei Univ.; 2003. Korean.
  22. Jong Y. An inquiry on stress and coping in child with cancer [dissertation]. Seoul: Kyung hee Univ.; 1998. Korean.
  23. Kim CJ. Treatment effect of hope, proved by medical survey. Health Chosun [Internet]. 2006. Feb 14 [cited 2015 Mar 03]. Available from: http://health.chosun.com.
  24. Choi KS, Choi SY, Ryu EJ. Hope effects in simple mediation models in patients with cancer. J Korean Acad Soc Nurs Edu 2006;12:280-6.