Asian Pacific Journal of Cancer Prevention

Asian Pacific Journal of Cancer Prevention (아시아태평양암예방학회)
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Developing a Scale for Quality of Life in Pediatric Oncology Patients Aged 7-12 - Children and Parent Forms

  • Kudubes, Asli Akdeniz (Department of Oncology Nursing, Faculty of Nursing, Dokuz Eylul University) ;
  • Bektas, Murat (Department of Pediatric Nursing, Faculty of Nursing, Dokuz Eylul University)
  • Published : 2015.02.25
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Abstract

Background: This study was planned in an attempt to develop a scale for the quality of life in pediatric oncology patients aged 7-12, with child and parents forms. Materials and Methods: In collecting the study data, we used the Child and Parent Information Form, Visual Quality of Life Scale, Scale for Quality of Life Pediatric Oncology Patients Aged 7-12 and the Scale for the Quality of Life in Pediatric Oncology Patients Aged 7-12 for Parents. We also used Pearson correlation analysis, the Cronbach alpha coefficient, factor analysis and ROC analysis for the study data. Results: In this study, the total Cronbach alpha value of the parent form was 0.96, the total factor load being 0.54-0.90 and the total variance explained was 82.5%. The cutoff point of the parent form was 93 points. The total Cronbach alpha value for the child form was 0.96, with a total factor load of 0.55-0.91 and the total variance being explained was 78.3%. The cutoff point of the child form was 65 points. Conclusions: This study suggests that the Scale for Quality of Life in Pediatric Oncology Patients Aged 7-12 Child and Parents Forms are valid and reliable instruments in assessing the quality of life of children.

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References

  1. Aaronson NK, Ahmedzai S, Bullinger M, et al (1991). The EORTC core quality of life questionnaire: Interim results of an international field study. In: Osoba D. ed. Effect of Cancer on Quality of Life. Boca Raton, FL: CRC Press:185-203.
  2. Ainuddin HA, Loh SY, Low WY, et al (2012). Quality of life of multiethnic adolescents living with a parent with cancer. Asian Pac J Cancer Prev, 13, 6289-94. https://doi.org/10.7314/APJCP.2012.13.12.6289
  3. American Cancer Society (2013). Access Date: 15.10.2013. http://www.cancer.org/acs/groups/content/@epidemiologysurveilance/documents/document/acspc-036845.pdf.
  4. Akgul A (2003). Statistical analysis techniques, using SPSS in medical research. Ankara: Offset Labour Limited Company, 187-224, 382-5.
  5. Arslan FT, Basbakkal Z, Kantar M (2013). Quality of life and chemotherapy-related symptoms of Turkish cancer children undergoing chemotherapy. Asian Pac J Cancer Prev, 14, 1761-8. https://doi.org/10.7314/APJCP.2013.14.3.1761
  6. Barrera M, Boyd-Pringle LA, Sumbler K, et al (2000). Quality of life and behavioral adjustment after pediatric bone marrow transplantation. Bone Marrow Transplantation, 26, 427-35. https://doi.org/10.1038/sj.bmt.1702527
  7. Bradlyn AS, Ritchey AK, Harri, CV, et al (1996). Quality of life research in pediatric oncology. American Cancer Society, 1333-9.
  8. Bugge KE, Helseth S, Darbyshire P (2008). Children's experiences of participation in a family support program when their parent has incurable cancer. Cancer Nursing, 31, 427-34.
  9. Collins JJ, Byrnes ME, Dunkel IJ (2000). The measurement of symptoms in children with cancer. J Pain Symptom Manage, 19, 363-77. https://doi.org/10.1016/S0885-3924(00)00127-5
  10. Citak EA, Toruner EK, Gunes NB (2013). Exploring communication difficulties in pediatric hematology: Oncology nurses. Asian Pac J Cancer Prev, 14, 5477-82. https://doi.org/10.7314/APJCP.2013.14.9.5477
  11. DemirbagBC, Kurtuncu M, Guven H (2013). Knowledge of Turkish mothers with children in the 0-13 age group about cancer symptoms. Asian Pac J Cancer Prev, 14, 1031-5. https://doi.org/10.7314/APJCP.2013.14.2.1031
  12. Dirican A (2001). Evaluation and comparison of diagnostic test performance. J Cerrahpasa Medical, 32, 25-30.
  13. Emir S (2009). Childhood cancers and how we can protect our children against cancer. Pediatrics Bulletin, 6, 2-8.
  14. Erkus A (2002). Psychometrics is overwritten. Turkish Psychological Association Publication, Ankara, 1-30.
  15. Genc ER, Conk Z (2008). Impact of effective nursing interventions to the fatigue syndrome in children who receive chemotherapy. Cancer Nursing, 31, 312-7. https://doi.org/10.1097/01.NCC.0000305740.18711.c6
  16. Goodwin DAJ, Boggs SR, Graham-Pole J (1994). Development and validation of the pediatric oncology quality of life scale. J Psychol Assess, 6, 321-8, https://doi.org/10.1037/1040-3590.6.4.321
  17. Gozum S, Aksayan S (2002). Guidelines for cross-cultural scale adaptation II: Psychometric properties and cross-cultural comparison. J Nur Res Development, 5, 3-14.
  18. Hinds PS, Hockenberry-Eaton M (2001). Developing a research program on fatigue in children and adolescents diagnosed with cancer. J Pediatr Oncol Nurs, 18, 3-12.
  19. Karasar N (1999). Scientific research method. Ankara: Memories Publishing.
  20. Kelly KP, Porock D (2005). A survey of pediatric oncology nurses' perceptions of parent educational needs. J Pediatr Oncol Nurs, 22, 58-66. https://doi.org/10.1177/1043454204272537
  21. Kudubes AA, Bektas M, Ugur O (2014). Symptom frequency of children with cancer and parent quality of life in Turkey. Asian Pac J Cancer Prev, 15, 3487. https://doi.org/10.7314/APJCP.2014.15.8.3487
  22. Matzioua V, Perdikarisb P, Felonic D, et al (2008). Cancer in childhood: Children's and parents' aspects for quality of life. Eur J Oncol Nur, 12, 209-16.
  23. Okcin F, Karadakovan A. (2012). Reliability and validity of the Quality of Life-Family Version (QOL-FV) in Turkish family caregivers of patients with cancer. Asian Pac J Cancer Prev, 13, 4235-840. https://doi.org/10.7314/APJCP.2012.13.9.4235
  24. Ozdamar K (2005). Software Packages with Statistical Data Analysis. Eskisehir: Kaan Bookstores, 235-78.
  25. Ozguven IE (2000). Psychologic tests. Ankara: System Offset.
  26. Perkins NJ, Schisterman EF (2005). The Youden Index and the optimal cut point corrected for measurement error. Biom J, 47, 428-41. https://doi.org/10.1002/bimj.200410133
  27. Savasir I, Sahin HN (2002). Evaluation in cognitive behavioral therapy: Frequently used tools. Ankara: Turkish Psychological Association Publication.
  28. Sencan H. (2005). The reliability and validity of the Social and Behavioral Measurement. Ankara: Seckin Publishing.
  29. Simsek OF (2007). Structural equation modeling inputs: basic principles and application of LISREL. Istanbul: Ekinoks Publishing.
  30. Tavsanel E (2002). Attitudes measurement and data analysis with SPSS. Ankara: Nobel Publishing House, 16-61.
  31. Wiangnon S, Jetsrisuparb A, Komvilaisak P, et al (2014). Childhood cancer incidence and survival 1985-2009, Khon Kaen, Thailand. Asian Pac J Cancer Prev, 15, 7989-93. https://doi.org/10.7314/APJCP.2014.15.18.7989
  32. Woodgate RL, Degner LF (2003). Expectations and beliefs about children's cancer symptoms: perspectives of children with cancer and their families. Oncol Nurs Forum, 30, 479-91. https://doi.org/10.1188/03.ONF.479-491
  33. Woodgate RL, Degner LF, Yanofsky R (2003). A different perspective to approaching cancer symptoms in children. J Pain Symptom Manage, 26, 800-17. https://doi.org/10.1016/S0885-3924(03)00285-9
  34. Wong DL, Hockenberry MJ (2003). Wong's nursing care of infants and chidren, USA: Mosby Inc, 905-74, 1584-1635.
  35. Varni JW, Katz ER, Seid M, et al (1998). The Pediatric Cancer Quality of Life Inventory (PCQL) Instrument development, descriptive statistics, and cross-informant variance. J Behav Medicine, 21, 179-204. https://doi.org/10.1023/A:1018779908502
  36. Vegian LH, Lubin JH, Anderson H, et al (2012). A pooled analysis of thyroid cancer incidence fallowing radiotherapy for childhood cancer. Radiat Res, 178, 365-76. https://doi.org/10.1667/RR2889.1
  37. Yakar HK, Pinar R (2013). Reliability and validity of Turkish version of the caregiver quality of life index cancer scale. Asian Pac J Cancer Prev, 14, 4415-19. https://doi.org/10.7314/APJCP.2013.14.7.4415

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