Child Health Nursing Research

Korean Academy of Child Health Nursing (한국아동간호학회)
권호 표지
DOI QR코드

DOI QR Code

Childhood Cancer Survivor's Services Needs for the Better Quality of Life

소아암 완치자의 삶의 질 향상을 위한 서비스 욕구

  • Kim, Min-Ah (School of Social Work, University of Southern California) ;
  • Yi, Jae-Hee (College of Social Work, University of Utah)
  • 김민아 (남가주대학교 사회사업대학원) ;
  • 이재희 (유타대학교 사회사업학과)
  • Received : 2011.10.27
  • Accepted : 2011.12.07
  • Published : 2012.01.31
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: The study aimed to identity specific needs for services and programs to help childhood cancer survivors adjust and adapt to life after treatment. Methods: In-depth interviews were conducted with 31 childhood cancer survivors, diagnosed with cancer before the age of 18 and currently between 15 and 39 years of age. Each survivor had completed his/her cancer treatment. Results: The participating cancer survivors reported needs for services related to psychological counseling, schooling and learning, social skills, mentorship, integrated health management, self support activities, families of survivors, and public recognition and awareness. Conclusion: The results of the study indicate a need to better understand childhood cancer survivors, provides a basis for developing various services and programs to improve the quality of life among childhood cancer patients, survivors, and their families, and supports the importance of psychosocial adjustment.

Keywords

References

  1. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: American Psychiatric Association.
  2. Andrykowski, M. A., Cordova, M. J., McGrath, P. C., Sloan, D. A., & Kenady, D. E. (2000). Stability and change in posttraumatic stress disorder symptoms following breast cancer treatment: A 1year follow-up. Psycho Oncology, 9, 69-78. https://doi.org/10.1002/(SICI)1099-1611(200001/02)9:1<69::AID-PON439>3.0.CO;2-R
  3. Bruce, M. (2006). A systematic and conceptual review of posttraumatic stress in childhood cancer survivors and their parents. Clinical Psychology Review, 26, 233-256. https://doi.org/10.1016/j.cpr.2005.10.002
  4. Cella, D. F., Mahon, S. M., & Donovan, M. I. (1990). Cancer recurrence as a traumatic event. Behavioral Medicine, 16, 15-22. https://doi.org/10.1080/08964289.1990.9934587
  5. Cohen, J. A., Mannerino, A. P., & Deblinger, E. (2006). Treating Trauma and Traumatic Grief in Children and Adolescents. New York, NY: Guilford Press.
  6. Cordova, M. J., Andrykowski, M. A., Redd, W. H., Kenady, D. E., McGrath, P. C., & Sloan, D. (1995). Frequency and correlates of posttraumatic-stress-disorder-like symptoms after treatment for breast cancer. Journal of Consulting and Clinical Psychology, 63, 981-986.
  7. Foa, E. B., Cashman, L., Jaycox, L., & Perry, K. (1997). The validation of a self-report measure of posttraumatic stress disorder: The Posttraumatic Diagnostic Scale. Psychological Assessment, 9, 445-451.
  8. Green, B. L., Krupnick, J. L., Rowland, J. H., Epstein, S. A., Stockton, P., Spertus, I., et al. (2000). Trauma history as a predictor of psychologic symptoms in women with breast cancer. Journal of Clinical Oncology, 18, 1084-1093.
  9. Kim, Y. J., Cha, G. H., Kim, C. A., Park, Y. J., Kim, H. J., Seo, J. J., et al. (2008). Child cancer survivor's quality of life based on their parent's support and past history. The Korean Academy of Psychiatric and Mental Health Nursing, 17, 85-96.
  10. Korean National Cancer Institute. (2010). Annual report of cancer statistics in Korea. Retrieved December 1, 2010, from http://ncrs.cancer.go.kr/index.do
  11. Kwon, H. J., Kim, Y. J., & Cha, H. G. (2009). Relationship of self-esteem and social support to depression in child cancer survivors. Journal of Korean Academy Child Health Nursing, 15, 219-227. https://doi.org/10.4094/jkachn.2009.15.2.219
  12. Langeveld, N. E., Grootenhuis, M. A., Voute, P. A., & Haan, R. J. (2004). Posttraumatic stress symptoms in adult survivors of childhood cancer. Pediatric Blood Cancer, 42, 604-610. https://doi.org/10.1002/pbc.20024
  13. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.
  14. Madan-Swain, A., Brown, R. T., Foster, M. A., Vega, R., Byars, K., Rodenberger, W., et al. (2000). Identity in adolescent survivors of childhood cancer. Journal of Pediatric Psychology, 25, 105-115. https://doi.org/10.1093/jpepsy/25.2.105
  15. Meeske, K. A., Ruccione, K., Globe, D. R., & Stuber, M. L. (2001). Posttraumatic stress, quality of life, and psychological distress in young adult survivors of childhood cancer. Oncology Nursing Forum, 28, 481-489.
  16. Mullan, F. (1985). Seasons of survival: Reflections of a physician with cancer. New England Journal of Medicine, 313, 270-273.
  17. Nathan, P., Ford, J., Henderson, T., Hudson, M., Emmons, K. M., Casillas, J. N., et al. (2009). Health behaviors, medical care, and interventions to promote healthy living in the childhood cancer survivor study cohort. Journal of Clinical Oncology, 27, 2363-2373. https://doi.org/10.1200/JCO.2008.21.1441
  18. National Cancer Institute (2004). About survivorship research: Survivorship definitions. Retrieved December 1, 2010, from http://cancercontrol.cancer.gov/ocs/definitions.html
  19. Nordin, K., & Glimelius, B. (1998). Reactions to gastrointestinal cancer-variation in mental adjustment and emotional well-being over time in patients with different prognoses. Psycho-Oncology, 7, 413-423. https://doi.org/10.1002/(SICI)1099-1611(1998090)7:5<413::AID-PON318>3.0.CO;2-Q
  20. Oeffinger, K. C., Mertens, A. C., Sklar, C. A., Kawashima, T., Hudson, M. M., Meadows, A. T., et al. (2006). Chronic health conditions in adult survivors of childhood cancer. New England Journal of the Medicine, 355, 1572-1582. https://doi.org/10.1056/NEJMsa060185
  21. Smith, M. Y., Redd, W., DuHamel, K., Vickberg, S. J., & Ricketts, P. (1999). Validation of the PTSD-Civilian Version in survivors of bone marrow transplantation. Journal of Traumatic Stress, 12, 485-499. https://doi.org/10.1023/A:1024719104351
  22. Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). London: Sage Publications Inc.
  23. Tedeschi, R. G., & Calhoun, L. G. (1995). Trauma and transformation: Growing in the aftermath of suffering. Thousand Oaks, CA: Sage.
  24. Wang, C. (1999). Photovoice: A participatory action research strategy applied to women's health. Journal of Women's Health, 8, 185-192. https://doi.org/10.1089/jwh.1999.8.185
  25. Welch-McCaffrey, D., Hoffman, B., Leigh, S. A., Loescher, L. J., & Meyskens, F. L. Jr. (1989). Surviving adult cancers. Part 2: Psychosocial implications. Annals of Internal Medicine, 111, 517-524. https://doi.org/10.7326/0003-4819-111-6-517
  26. Yi, J., & Zebrack, B. (2010). Self-portraits of families with young adult cancer survivors: Using photovoice methodology. Journal of Psychosocial Oncology, 28, 219-243. https://doi.org/10.1080/07347331003678329
  27. You, M. A. (2006). Content analysis on psychosocial adjustment of adolescent survivors of Leukemia. Journal of Korean Academy Child Health Nursing, 12, 304-313.

Cited by

  1. Psychological Distress in Adolescent and Young Adult Survivors of Childhood Cancer in Korea vol.30, pp.2, 2012, https://doi.org/10.1177/1043454213478469
  2. 의미요법 교육 프로그램이 사춘기 초기 암환아의 삶의 의미발견에 미치는 효과 vol.13, pp.1, 2012, https://doi.org/10.5388/aon.2013.13.1.49
  3. Postcancer Experiences of Childhood Cancer Survivors: How Is Posttraumatic Stress Related to Posttraumatic Growth? vol.27, pp.4, 2012, https://doi.org/10.1002/jts.21941
  4. Impact of psychological and cancer-related factors on HRQoL for Korean childhood cancer survivors vol.23, pp.9, 2012, https://doi.org/10.1007/s11136-014-0709-5
  5. Health-related Needs and Quality of Life in Childhood Cancer Survivors vol.15, pp.4, 2015, https://doi.org/10.5388/aon.2015.15.4.246
  6. Childhood cancer survivors' experiences in school re-entry in South Korea: Focusing on academic problems and peer victimization vol.67, pp.None, 2012, https://doi.org/10.1016/j.childyouth.2016.06.022
  7. 청소년 암 생존자의 적응 경험과 사회적 지지망 vol.23, pp.2, 2017, https://doi.org/10.4094/chnr.2017.23.2.238
  8. Evaluation of the TSL® Program for Parents of Children With Cancer vol.28, pp.2, 2012, https://doi.org/10.1177/1049731516637121
  9. 소아암 생존자가 인지한 어려움에 대한 탐색적 연구 : 포커스그룹 인터뷰를 중심으로 vol.9, pp.12, 2012, https://doi.org/10.15207/jkcs.2018.9.12.467
  10. 소아암 생존자의 건강관련 요구에 대한 고찰 vol.11, pp.3, 2012, https://doi.org/10.15207/jkcs.2020.11.3.361
  11. How do they grow out of their cancer experience? Korean adolescent and young adult cancer survivors’ stories vol.26, pp.8, 2012, https://doi.org/10.1080/13557858.2019.1606164