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BRCA 돌연변인 검사 중 유방암 환자 가족의 커뮤니케이션 패턴

Communication Patterns in Korean Families during BRCA Genetic Testing for Breast Cancer

  • 투고 : 2011.09.30
  • 심사 : 2011.10.30
  • 발행 : 2011.11.30

초록

Purpose: The purpose of this micro-ethnography is to examine whether science and societal changes impact family communication patterns among a convenience sample of 16 Korean women. Methods: The authors observed family communication in the context of a new breast cancer genetic screening and diagnostic testing program to detect BRCA gene mutations in Korean women at highest risk. Results: Analysis of in-depth interviews and field notes taken during participant observation illustrated that communication patterns in families vary according to a woman's position in the family. If a grandmother tests positive for a gene mutation, her daughters make decisions on her behalf; they open and maintain the communication channel among family members. If a housewife is diagnosed with cancer and a genetic mutation, she immediately consults her husband and her sisters. The husband creates an open communication channel between his wife, his parents and his siblings. As a result, a woman's cancer is a concern for the whole family not merely a woman's secret or crisis. Conclusion: Cultural differences are important to consider when designing new genetic service programs in different countries.

과제정보

연구 과제 주관 기관 : National Research Foundation of Korean (NRF)