Journal of muscle and joint health (근관절건강학회지)
- Volume 15 Issue 2
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- Pages.140-154
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- 2008
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- 1975-9398(pISSN)
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- 2288-789X(eISSN)
The Adjustment Process of Patients with Amyotrophic Lateral Sclerosis
근위축성측삭경화증 환자의 적응과정
- Lee, Yoon-Kyoung (Department of Nursing, Hanyang University) ;
- Lim, Nan-Young (Department of Nursing, Hanyang University) ;
- Kim, Seung-Hyun (Department of Nursing, Hanyang University)
- Published : 2008.11.30
Abstract
Purpose: The purpose of this study was to describe the adjustment process of patients with Amyotrophic Lateral Sclerosis(ALS). Method: The data were collected from May 2007 to February 2008 through individual in-depth interviews with 4 ALS patients. The data collection and analysis were performed according to grounded theory methodology, as suggested by Strauss and Corbin. Results: 'Accepting the sick role' was the central phenomenon, which was derived from 'perceiving an intial symptom'. Therefore, the adjustment pattern was represented by using the different strategies, which were 'raising hope' and 'hoping to dye comfortably'. For taking a view of the future, ALS patients adopted the strategies of 'living positively', 'being treated hardly', 'joining in the experience', 'depending on the absolute being', 'recognizing the dying process'. Conclusion: This study provides guidance for the development of nursing interventions for patients with ALS.
Keywords