A Study on the Agreement and Bias between Parents' Proxy report and Self-report of People with Developmental Disabilities

발달장애인 부모의 대리 의사표시의 정합도와 편향에 관한 연구

  • Chun, Dong-il (Department of Social Welfare, Kangwon National University) ;
  • Jeon, Ji-Hye (Department of Social Welfare, Incheon National University)
  • 전동일 (강원대학교 사회복지학과) ;
  • 전지혜 (인천대학교 사회복지학과)
  • Received : 2019.03.22
  • Accepted : 2019.05.20
  • Published : 2019.05.28


The purpose of this study is to analyze whether parents with developmental disabilities are well represented by the persons with developmental disabilities. Analysis data is based on the data from the Survey on Disability Survey in 2014. We analyzed the consistency and biases of the parent's proxy respondents' opinions by the degree of agreement between the contents of the person with developmental disabilities and the value of items that the parents answered on behalf of the development disabled. First, the parents' proxy respondents responded well to the actual situation such as life satisfaction for the developmental disabled, while the parental proxy respondents showed the positive bias to overestimate the cost items and the negative bias to recognize the discrimination. Second, in relation to independent living, the majority of the parents of the developmental disabled respondents had a high agreement with the developmental disabled person. However, about 5 ~ 10% of the parents' proxy respondents seem to have a tendency to distort the independent living policy by preferring non-standard housing types, unlike those with developmental disabilities. Based on this, it was proposed that the respondents should be able to receive the answers of the possible parties in the future research on desire and independent living related intention toward the developmental disabled, and the research on the matching of the proxy response is needed in a multidimensional manner.

Table 1. Demographic Characteristics of Respondents

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Table 2. Research Variables

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Table 3. The response of self report and proxy report to 'Truth'

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Table 4. The response of self report and proxy report to 'Perception'

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Table 5. The response of self report and proxy report to 'Desire'

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