- Volume 17 Issue 6
Prioritizing the Preferences of Iranian Cancer Patients Regarding Acquisition of Health Information: Strategy for Patient Education
- Zadeh, Jamileh Mahdi (Medical school of Semnan university of medical sciences) ;
- Fard, Farahnaz Ghahreman (Social Determinant of Health Research Center, Nursing and Allied Health School, Semnan University of Medical Sciences) ;
- Madani, Raihaneh ;
- Iravani, Homa ;
- Kahouei, Mehdi
- Published : 2016.06.01
Recognizing cancer patients' preferences to obtain health information can help improve and reform the methods of communicating and providing proper services and consequently lead to effective patient education. The present cross-sectional study to prioritize the preferences of cancer patients regarding the acquisition of health informationwas conducted on cancer patients referred to hospitals affiliated to Semnan University of Medical Sciences in 2015. An anonymous self-administered questionnaire was developed. In the field of side effects of medications, 50 (46.7%) reported knowing about weight change, in the area of achieving relative health, 62(57.9%) announced awareness about diet, and 45 (42.1%) reported physical complications as a first regarding information needs. In the area of obtaining information, 50 (46.7%) tended to take their information through means outside of the hospital setting. These results can help with design of clinical information systems, as they inform the most relevant and useful coverage designed for cancer patients. Providing useful information through healthcare providers, the media and clinical information systems can act as a major source of social support for cancer patients.
Preferences;cancer patients;education;health information;Iran
- Bahous MC, Shadmi E (2016). Health information exchange and information gaps in referrals to a pediatric emergency department. Int J Med Inform, 87, 68-74. https://doi.org/10.1016/j.ijmedinf.2015.12.011
- Barrett M, Chu A, Chen J, et al (2016). Quality of life in community-dwelling Chinese American Patients with cancer pain. J Immigr Minor Health, 18, 1-7. https://doi.org/10.1007/s10903-014-0152-2
- Beaver K, Latif S, Williamson S, et al (2010). An exploratory study of the follow-up care needs of patients treated for colorectal cancer. J Clin Nurs, 19, 3291-300. https://doi.org/10.1111/j.1365-2702.2010.03407.x
- Beekers N, Husson O, Mols F, et al (2015). Symptoms of anxiety and depression are associated with satisfaction with information provision and internet use among 3080 cancer survivors: results of the PROFILES Registry. Cancer Nurs, 38, 335-42. https://doi.org/10.1097/NCC.0000000000000184
- Conley CC, Kamen CS, Heckler CE,et al (2016). Modafinil moderates the relationship between cancer-related fatigue and depression in 541 patients receiving chemotherapy. J Clin Psychopharmacol, 36, 82-5. https://doi.org/10.1097/JCP.0000000000000442
- Douma KF, Koning CC, Zandbelt LC et al (2012). Do patients' information needs decrease over the course of radiotherapy? Support Care Cancer, 20, 2167-76. https://doi.org/10.1007/s00520-011-1328-0
- Henselmans I, Jacobs M, Van Berge Henegouwen, M I et al (2012). Postoperative information needs and communication barriers of esophageal cancer patients. Patient Educ Couns, 88, 138-46. https://doi.org/10.1016/j.pec.2011.12.004
- Husson O, Mols F, Van de Poll-Franse LV (2011). The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review. Ann Oncol, 22, 761-72. https://doi.org/10.1093/annonc/mdq413
- Innominato PF, Giacchetti S, Moreau T, et al (2013). Fatigue and weight loss predict survival on circadian chemotherapy for metastatic colorectal cancer. Cancer, 119, 2564-73. https://doi.org/10.1002/cncr.28072
- Jayadevappa R, Malkowicz SB, Chhatre S, et al (2012). The burden of depression in prostate cancer. Psychooncol, 21, 1338-45. https://doi.org/10.1002/pon.2032
- Kahouei M, Ahmadi Z, Kazemzadeh, F (2014). Evaluation of organizational support for use of online information resources in nursing care. J Evid Based Med, 7, 252-7. https://doi.org/10.1111/jebm.12124
- Kahouei M, Zadeh JM, Roghani PS (2015). The evaluation of the compatibility of electronic patient record (EPR) system with nurses' management needs in a developing country. Int J Med Inform, 84, 263-70. https://doi.org/10.1016/j.ijmedinf.2014.12.006
- Kent EE, Smith AW, Keegan TH, et al (2013). Talking about cancer and meeting peer survivors: social information needs of adolescents and young adults diagnosed with cancer. J Adolesc Young Adult Oncol, 2, 44-52. https://doi.org/10.1089/jayao.2012.0029
- Kenzik KM, Morey MC, Cohen HJ, Sloane R, Demark-Wahnefried W (2015). Symptoms, weight loss, and physical function in a lifestyle intervention study of older cancer survivors. J Geriatr Oncol, 6, 424-32. https://doi.org/10.1016/j.jgo.2015.08.004
- Kiesler DJ, Auerbach SM (2006). Optimal matches of patient preferences for information, decision-making and interpersonal behavior: evidence, models and interventions. Patient Educ Couns, 61, 319-41. https://doi.org/10.1016/j.pec.2005.08.002
- Kimman M, Jan S, Monaghan H, Woodward M (2015). The relationship between economic characteristics and healthrelated quality of life in newly diagnosed cancer patients in Southeast Asia: results from an observational study. Qual Life Res, 24, 937-49. https://doi.org/10.1007/s11136-014-0828-z
- King N, Balneaves LG, Levin GT, et al (2015). Surveys of cancer patients and cancer health care providers regarding complementary therapy use, communication, and information needs. Integr Cancer Ther, 14, 515-4. https://doi.org/10.1177/1534735415589984
- Kourlaba G, Relakis J, Mylonas C, et al (2015). The humanistic and economic burden of venous thromboembolism in cancer patients: a systematic review. Blood Coagul Fibrinolysis, 26, 13-31. https://doi.org/10.1097/MBC.0000000000000193
- Langius JA, Twisk J, Kampman M, et al (2016). Prediction model to predict critical weight loss in patients with head and neck cancer during (chemo) radiotherapy. Oral Oncol, 52, 91-6. https://doi.org/10.1016/j.oraloncology.2015.10.021
- Liu FX, Flatt SW, Pakiz B, et al (2016). Physical activity levels of overweight or obese breast cancer survivors: correlates at entry into a weight loss intervention study. Support Care Cancer, 24,173-80. https://doi.org/10.1007/s00520-015-2761-2
- Mahboobe S, Zeinab P, Zahra A, et al (2012). Mental health and coping styles in families of epileptic patients in Iran. Soc Sci, 7, 130-3.
- Mandl KD, Kohane IS (2016). Time for a patient-driven health information economy? New England Med, 374, 205-8. https://doi.org/10.1056/NEJMp1512142
- Matsuyama RK, Kuhn LA, Molisani A, Wilson-Genderson MC (2013). Cancer patients' information needs the first nine months after diagnosis. Patient Educ Couns, 90, 96-102. https://doi.org/10.1016/j.pec.2012.09.009
- Mehdi K., Mehri F, Panoe SR, et al (2011). Evidence-based information resources management skill among Iranian residents, internship and nursing students in urgent care. Sci Res Essays, 6, 4708-13.
- Mozhgan K, Sadat GS, Malekeh M, Kahouei M (2012) The survey of residents and radiologists' attitudes about access to patient information in Teleradiology in Iran. J Eng Appl Sci, 7, 155-8.
- Nagler RH, Gray SW, Romantan A, et al (2010). Differences in information seeking among breast, prostate, and colorectal cancer patients: Results from a population-based survey. Patient Educ Couns, 81, 54-62. https://doi.org/10.1016/j.pec.2010.09.010
- Playdon M, Ferrucci LM, McCorkle R, et al (2016). Health information needs and preferences in relation to survivorship care plans of long-term cancer survivors in the American cancer society's study of cancer survivors-I. J Cancer Surviv, 7, 1-12.
- Posma ER, Van Weert JC, Jansen J, Bensing J M (2009). Older cancer patients' information and support needs surrounding treatment: An evaluation through the eyes of patients, relatives and professionals. BMC Nurs, 8, 1.-15. https://doi.org/10.1186/1472-6955-8-1
- Protière C, Moumjid N, Bouhnik AD, et al (2012). Heterogeneity of cancer patient information-seeking behaviors. Med Decis Making, 32, 362-75. https://doi.org/10.1177/0272989X11415114
- Schmidt A, Ernstmann N, Wesselmann S, et al (2016). After initial treatment for primary breast cancer: information needs, health literacy, and the role of health care workers. Support Care Cancer, 24, 563-71. https://doi.org/10.1007/s00520-015-2814-6
- Yeo G (2016). Information needs analysis: principles and practice in information organizations, Ed by Daniel G Dorner, GE Gorman and Philip J Calvert Archives Records, 37, 103-5. https://doi.org/10.1080/23257962.2016.1154032