Neonatal Intensive Care Unit Nurses' Experience in Caring for Infants Who Are Dying

신생아중환자실 간호사의 임종 환아 돌봄 경험

  • Kang, Hyun-Ju (College of Nursing, Seoul National University) ;
  • Bang, Kyung-Sook (College of Nursing & The Research Institute of Nursing Science, Seoul National University)
  • 강현주 (서울대학교 간호대학) ;
  • 방경숙 (서울대학교 간호대학.간호과학연구소)
  • Received : 2013.05.26
  • Accepted : 2013.09.03
  • Published : 2013.10.31


Purpose: The purpose of this phenomenological study was to explore neonatal intensive care unit (NICU) nurses' experience in caring for infants who are approaching death and to identity the meaning and structure of their experiences. Methods: The participants were eight nurses who had experience in caring for these infants. In-depth interviews were performed from December, 2012 to February, 2013 until data were fully saturated. Collected data were analyzed using Colaizzi's method. Results: Four theme clusters were extracted from fifteen themes. The four theme clusters of the NICU nurses' experience in caring for infants who are dying were: 1) Crossroads between life and comfort of infants approaching death, 2) emotional suffering at the death of the infant, 3) adapting and coping with the death of the infant, 4) new expectations for caring for infants who are dying. Conclusion: The results of the study provide useful information in understanding NICU nurses' experience in caring for infants who are dying and establishing effective strategies to support these nurses.


  1. Boyle, D. A. (2006). Desperate nursewives. Oncology Nursing Forum, 33(1), 11. Doi: 10.1188/06. ONF.11
  2. Bush, N. J., & Boyle, D. A. (2012). Self-healing through reflection: A workbook for nurses (1st ed.). Pittsburgh: Oncology Nursing Society.
  3. Catlin, A. (2004). Neonatal end-of-life care. The American Journal of Nursing, 104(8), 15.
  4. Choi, J. S., & Lee, N. H. (2011). Policy issues on birth outcomes from shifting trends in childbearing. Seoul: Korea Institute for Health and Social Affairs.
  5. Colaizzi, P. F. (1978). Psychological research as the phenomenologist views it. In R. S. Valle & M. King (Eds.), Existential phenomenological alternatives for psychology (pp. 48-71). New York: Oxford University Press.
  6. Dessy, E. (2009). Effective communication in difficult situation: Preventing stress and burnout in the NICU. Early Human Development, 85(10), S39-S41.
  7. Doka, K. J. (2002). Disenfranchised grief: New directions, challenges, and strategies for practice (1st ed.). Champaign, IL: Research Press
  8. Kain, V. J. (2007). Moral distress and providing care to dying babies in neonatal nursing. International Journal of Palliative Nursing, 13(5), 243-248.
  9. Kang, B. H., Jung, K. A., Hahn, W. H., Shim, K. S., Chang, J. Y., & Bae, C. W. (2011). Regional analysis on the incidence of preterm and low birth weight infant and the current situation on the neonatal intensive care units in Korea, 2009. Journal of the Korean Society of Neonatology, 18(1), 70-75.
  10. Kang, K. A., & Kim, S. J. (2003). The present and future of children′s hospice care in Korea. Korean Journal of Child Health Nursing, 9(2), 190-197.
  11. Kang, S. Y. (2001). The lived experience of nursing care for the dying patients in clinical nurses. The Journal of Korean Nursing Administration Academic Society, 7(2), 237-251.
  12. Keene, E. A., Hutton, N., Hall, B., & Rushton, C. (2010). Bereavement debriefing sessions: an intervention to support health care professionals in managing their grief after the death of a patient. Pediatric Nursing, 36(4), 185-189.
  13. Kong, B. H. (2004). Phenomenology in nursing research. Research in Philosophy and Phenomenology, 23, 151-178.
  14. Kubler-Ross, E. (1969). On death and dying. New York, NY: Macmilan.
  15. Lenart, S. B., Bauer, C. G., Brighton, D. D., Johnson, J. J., & Stringer, T. M. (1998). Grief support for nursing staff in the ICU. Journal of Nurses in Staff Development, 14(6), 293-296.
  16. Omery, A. (1983). Phenomenology: A method for nursing research. Advances in Nursing Science, 5(2), 49-63.
  17. Rushton, C. H., Reder, E., Hall, B., Comello, K., Sellers, D. E., & Hutton, N. (2006). Interdisciplinary interventions to improve pediatric palliative care and reduce health care professional suffering. Journal of Palliative Medicine, 9(4), 922-933.
  18. Sandelowski, M. (1986). The problem of rigor in qualitative research. Advances in Nursing Science, 8(3), 27-37.
  19. Statistics Korea. (2011, June 29). Birth data of infant mortality (2005-2009). Retrieved December 4, 2012, from kor_nw/2/6/1/index.board?bmode=read&aSeq=248859
  20. Sherman, D. W. (2004). Nurses' stress and burnout: How to care for yourself when caring for patients and their families experiencing lifethreatening illness. American Journal of Nursing, 104(5), 48-56.
  21. Shimoinaba, K., O'Connor, M., Lee, S., & Greaves, J. (2009). Staff grief and support system for Japaneses health care professional working in palliative care. Palliative and Supportive Care, 7(2), 245-252.
  22. Wakefield, A. (2000). Nurses' responses to death and dying: A need for relentless self-care. International Journal of Palliative Nursing, 6(5), 245-251.
  23. Yam, B. M., Rossiter, J. C., & Cheung, K. Y. (2001). Caring for dying infants: Experience of neonatal intensive care nurse in Hong Kong. Journal of Clinical Nursing, 10(5), 651-659.
  24. Yi, M. S. (2003). Nurses' experience of caring for dying patients in hospitals. Journal of Korean Academy of Nursing, 33(5), 553-561.
  25. Yu, M. (2011). Work stress, turnover intention and burnout among nurses in neonatal intensive care units. Journal of Korean Academy of Nursing Administration, 17(1), 115-126.